Introduction

Hello to all. We started this blog to become more active for epilepsy and its affected families. A little about ourselves:

We are Dragonflies for Hope, a soon to be non-profit organization whose sole purpose is to make life better for the children and their families that have been impacted by epilepsy. We believe that every child is entitled to a happy environment in which they can grow.

Our son was diagnosed with epilepsy at the age of six. His first seizure sent him into status, his O2 levels dropped to the 40's and his lips turned blue. He was air-lifted from Evans Memorial Hospital (our rural hospital) to Memorial Hospital in Savannah. He was put on a ventilator and into a medically induced coma to get the seizures to stop. The seizures lasted 48 hours before they gave him a break. Dozens upon dozens of tests were done, MRI's, CT Scans, a spinal tap, and many hours of worry and agony passed through the next three weeks. No answers, no reasons, no solutions... just it is what it is. Our son recovered and was released; but the boy before the seizure was not the boy who left the hospital. We are very grateful to all of the doctors, nurses and staff at both hospitals. If not for them, we wouldn't have our son.

Unfortunately, our father was diagnosed with Glioblastoma (an incurable brain cancer) in September of the prior year. He is only 63 years old, just retired from his second 20 year career and was ready to enjoy the rest of his life. He had surgery to remove most of the tumor, and underwent chemotherapy and radiation. Even after all of this he was given 1-3 years to live. Two weeks  prior to our sons seizure, he was hospitalized with his first seizure also.

That's enough food for thought. I will post more about us soon.